sandychou6b6a4319

CONTACT US

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter Summer 2022

Sat, 06 Aug 2022 13:11:10 GMT

Meagan's Hug Newsletter

MEAGAN'S HUG NEWSLETTER

SUMMER 2022

A Message from our Founder

The emotional experience of walking again with the Meagan’s HUG community on May 7th is hard to describe. The two year hiatus lent intensity to the day.

Once again being together, seeing familiar faces and welcoming new participants: we all belong together, side-by-side, offering encouragement.

We say, “Hope Changes Everything.” Hope leads us to this effort. Hope brings us together. Our actions make a difference.

We heard again from our doctors and Meagan’s HUG Heroes how their lives are changed by our actions. Doctors remind us research continues to shine a light, leading to discovery of improved treatments that help children affected by brain tumour diagnoses to live healthier lives. Heroes tell their stories and show us why what we do matters.

Hope…equals hard work, tireless efforts, determination, and facing tough times.

Yes. Hope does change everything!

With abundant thanks for your kind support!

Denise Bebenek

Founder- Meagan’s HUG

BIKE FOR KIDS 2022: 5TH ANNIVERSARY RIDE!

On Saturday, August 13th, Team Bike for Kids will set out to mark the 5th anniversary of their epic ride across Canada that raised over $75, 000 to support families affected by paediatric brain tumours.

This year Bike for Kids will ride 150 km in one day, a distance which reflects the average kilometers covered in one day of their 2017 coast-to-coast effort.

Come cheer on the riders and say hello to the MH Team at the scheduled rest stops:

Etobicoke : Kara’s Café - 16 Hilo Rd 9:00am

Oakville : Croissant Express - 325 Lakeshore Rd E 10:30am

Grimsby : Station One - 28 Main Street E 1:30pm

YOUTH DAY TORONTO - 2022

On July 24th Meagan’s HUG was honoured to participate in the 16th Annual YOUTH DAY Toronto, a creative arts festival celebrating young people and their music, drama, art, photography, fashion and film.

YOUTH DAY offered a great opportunity for our Meagan’s HUG volunteers to meet young people and to tell them about this organization, and especially to highlight the great possibilities for youth to be engaged in the Meagan’s HUG school program, Kids Helping Kids.

Kids Helping Kids encourages young people of all ages to take action and to develop their own leadership skills while helping those in their own community who may be facing challenges.

Thanks to our Meagan’s HUG volunteers, Chris Van Gelder and Kathleen Walker, for their great support at YOUTH DAY Toronto 2022.

MEAGAN'S HUG 2022

The 21st Annual Meagan’s HUG took place on Saturday, May 7th, 2022. After a two year hiatus when an “in person” HUG was off limits, it was an intensely emotional day, with many familiar faces, new participants, all together, united in purpose.

A breezy and sunny morning- perfect weather! Fort York soon was busy as Meagan’s HUG participants arrived to enjoy the family-friendly activities, join the warm-up routines and hear some short speeches as we all waited for the walk to begin.

Dr. Inci Yamin, the 8th Meagan’s HUG Neuro-oncology Fellow, delivered a special greeting from the International Brain Tumour Alliance (IBTA), wishing Meagan’s HUG participants well. This year our Meagan’s HUG kilometres are symbolically “donated” to the IBTA’s 16th annual, global awareness campaign, Walk Around the World for Brain Tumours and its target to circle the Earth at its equator, a distance of approximately 40,000 kilometres.

10-9-8- 7…the Countdown Kids, all Meagan’s HUG Heroes, were on the stage, counting us down to the ribbon cutting marking the start of the walk.

Hope is integral to the spirit of Meagan’s HUG, and with that comes the determination to change the impact brain tumour diagnoses have on our children. Meagan’s HUG has been steadfast in its effort- and it is inspiring to hear about the advances made in paediatric care.

Following the completion of the HUG, hundreds of participants gathered for the Closing Ceremony where they listened intently to the speakers. All speakers echoed the importance of the theme, “bench to bedside”, a phrase that aptly describes the work supported by the Meagan’s HUG community. Research efforts at the laboratory bench are focused on achieving new and more effective therapies and treatments for the children.

Dr. James Rutka is a neuro-surgeon as well as Chair of the Department of Surgery in the Faculty of Medicine at University of Toronto. As Director of the Brain Tumour Research Centre (BTRC), his research interest focuses largely on molecular biology, and how brain tumours grow. A long standing supporter of Meagan’s HUG, Dr. Rukta participated this year with colleagues and his family.

Dr. Cynthia Hawkins, a colleague of Dr. Rutka’s spoke briefly as well. A clinician and senior scientist, and a Principal Investigator at the BTRC, Dr. Hawkins’ laboratory focuses on Diffuse Intrinsic Pontine Glioma (DIPG), a notoriously difficult to treat aggressive brain tumour. Dr. Hawkins underlined how research is collaborative, where labs work together to find advancements: “Just like Meagan’s HUG, we are stronger together.”

Joining Dr. Rutka and Dr. Hawkins on the stage were Meagan’s HUG Heroes, Jess Rosenbloom and Chris Dorsey. They both spoke of the community of support they find in Meagan’s HUG.

Diagnosed in 2013 when she was 9 years old, Jess knows too well about the unpredictable nature of brain tumours. After years of relative stability, progression in her tumour meant that treatment was resumed and completed only a few months ago.

Like Jess, Chris Dorsey first became aware of Meagan’s HUG due to his own experience with a brain tumour. In 2010, Chris was diagnosed with an inoperable brain tumour, resulting in lengthy courses of treatments. His Team comprised of Dorsey family members and supporters has participated in Meagan’s HUG every year since. Chris volunteers is a variety of ways, including public speaking opportunities, when he has attested to the importance of Meagan’s HUG in helping young people like him. Knowing that funds from Meagan’s HUG supported the development of one of his chemotherapy protocols makes Chris even more determined in his commitment to this organization.

Meagan’s mother, Denise, spoke words that resonated with all the speakers- your support makes a difference, your persistence inspires all of us. Her words complemented those of the doctors and heroes alike. As a community, despite the challenges of the past two years, how inspiring it is to be together again. This community of hope remains strong!

It’s that time of year…as summer days fly by, families are already planning for September and the beginning of a new school year.

Here’s how you can help while getting ready for back-to-school shopping: Sign up for FlipGive and support Meagan’s HUG while making those back-to-school purchases!

Join the Meagan’s HUG FlipGive Team- it’s easy and it works with your day-to-day purchases. Same brands, same stores, whether shopping on-line or in person, earn cashback on every purchase. FlipGive is a simple way to direct cash back to Meagan’s HUG!

Earn cash back on almost everything that you and your family buy for your regular shopping needs. Gas for the car, travel, your favourite coffee and donuts, groceries, sports gear, and tech supplies, and gift cards galore.

FlipGive…is free for you to use. No membership fees or commissions.

FlipGive…doesn’t charge the buyer more. In fact, FlipGive users receive exclusive promotions and cash-back offers.

FlipGive…is for shopping online or in the store.

FlipGive…is for you, every day, no special purchases, nothing for you to sell!

Your cashback dollars are donated directly to Meagan’s HUG!

In the spring, Meagan’s HUG responded to a plea for help for families from Ukraine. The world has reacted with shock to the humanitarian crisis, as Ukraine’s population struggles to survive the hard reality brought on by the invasion of their country.

In collaboration with the Ukrainian Canadian Congress, Meagan’s HUG reacted quickly developing a support structure for the families who would be making their way to Toronto to receive cancer care and treatment for their children.

Seven families have arrived in Toronto and are all under the care of the amazing team at SickKids

These families, ranging in size from 2 to 5 members, currently have no access to government funds or income to support their ongoing day-to-day living expenses. Some families have parents actively seeking employment, but job options are limited and low-paying.

The funding needed to sustain all these families is $29,720 per month, and the estimated period of support needed is 18 months.

To learn more about how you can make a difference please contact info@meaganshug.com or make a donation to the Hope for Ukraine Campaign.

Megan's HUG Hero, Hunter

It is with sadness that Meagan’s HUG learned of the recent death of Meagan’s HUG Hero, Hunter Lillian Ch amberlain.

In the summer of 2021, Hunter was diagnosed with Diffuse Intrinsic Pontine Glioma, an inoperable and malignant tumour.

A considerate and loving child, Hunter was known for her sparkling sense of humour and laugh, and positive ways, and made an indelible impression on her family, friends and inspired her community in Collingwood. She was especially a loving and caring presence for her sister, Londyn.

On May 7th, Team Hunter’s Beautiful Butterflies, participated in the 21st Meagan’s HUG. This day also happened to be Hunter’s 10th birthday. While Hunter was unable to participate in person, her spirit clearly inspired a determined and energetic HUG Team.

Meagan’s HUG offers condolences to Hunter’s family and friends. Hunter’s spirited ways will forever inspire, and she will always be missed and always loved.

Meagan’s HUG is proud that Founder, Denise Bebenek, was asked to be part of a series of podcasts produced by the International Brain Tumour Alliance (IBTA). As a mother, Denise’s voice brings a different perspective to the podcast series, as she speaks about her family’s experience with a brain tumour and the loss of Meagan, and the power of community.

Since the beginning of the IBTA, Meagan’s HUG has been pleased to be part of this global network, a community for brain tumour organizations and anyone involved in the field of neuro-oncology. The IBTA works diligently to raise awareness worldwide about brain tumours, and to promote collaborations and projects that benefit all in this brain tumour community.

Their goal is to improve the quality of life for those affected by a brain tumour diagnosis, by working with prospective supporters, researchers, media, and others who are involved in some way in the neuro-oncology community. And through their work, the IBTA celebrates the determination and achievements, especially those of families and caregivers affected by a brain tumour diagnosis.

Newsletter Volunteer Recognition: Thank you Debbie Tong & Blair Day

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter April 2022

Tue, 19 Apr 2022 22:41:34 GMT

Meagan's Hug Newsletter

MEAGAN'S HUG NEWSLETTER

April 2022

The HUG is just around the corner! Come walk with us as we dedicate this year’s event to families affected by paediatric brain tumours and send a message of hope to all Ukrainian families displaced by the war. Help welcome the Ukrainian families who have come to Toronto for their children’s cancer treatments.

Meagan’s HUG is a family-friendly event for all ages and abilities. Join as an individual, or bring your family, friends, and colleagues!

Secure your ticket for admission today!

JOIN IN PERSON

Attending the event in person? Click here to secure your ticket for admission today!
Next start fundraising! Click here to create your own personal fundraising or team page or join an existing team!
Invite your friends to donate and tell everyone about the walk & HUG

SUPPORT AT A DISTANCE

If you cannot join the HUG in person, join us at a distance! Fundraise and plan to walk in your neighbourhood on May 7th.
Click here to start fundraising! Create your own personal fundraising or team page or join an existing team!
Invite your friends to donate and tell everyone about the walk & HUG

We all are united in purpose and share a vision of a world free of brain tumours.Wherever you are, wherever you walk & HUG, you are making a difference!

Message from the Founder

I appreciate daily the strength I receive from this community of hope. This has been true for over 20 years!

It all began with my quiet thought that I did not want anyone to have to walk such a path alone. Others should be surrounded by the strength of a caring and compassionate community.

The challenges of the past two years- staying apart, missing family members and friends, both happy and sad occasions when we wish we could be together- these have been our reality. And yes, it has been difficult. Yes, we still have a bond, a spirit and determination that make us do this work. Our actions, wherever we do these, are significant.

I invite you to join me at this year’s 21st AnnualMeagan’s HUG. After this two year hiatus, I will be heading to Fort York National Historic Site onSaturday, May 7th, to gather with our community to begin our walk through the streets of Toronto, and create the circle of hope, the HUG, around SickKids.

And if you cannot join me at Fort York, I invite you to register and participate from wherever you are. Meagan’s HUG has friends and supporters far and wide, and we welcome all!

Denise Bebenek

Founder- Meagan’s HUG

Dr. Eric Bouffet’s Global Vision

When Dr. Eric Bouffet arrived in Toronto with his family in 2000, he had accepted the new role as Director of the Paediatric Neuro-oncology Section, developing and leading a multi-disciplinary neuro-oncology program at theThe Hospital for Sick Children in Toronto. It was a new country, a new opportunity with great plans ahead!

Now, 20+ years later, effective April 30, Dr. Bouffet is stepping back from his clinical activities at SickKids, as well as his faculty position as a Professor of Paediatrics at theUniversity of Toronto, where he will continue asProfessor Emeritus. His plans now are not to retire but to remain involved in many activities, directing his talents and energies to serve the global community in different ways.

Dr. Bouffet began his medical career as head of paediatric neuro-oncology at Centre Bérardin Lyon, France in 1987, followed by a position asSenior Lecturer at the University of Bristol, inEngland, starting in 1996. He then moved in 1998to the Royal Marsden in London. Dr. Victor Blanchette, Head of the Division ofHaematology/Oncology at SickKids, recruited him in 2000.

It was not long after his arrival in Canada, that Dr. Bouffet crossed paths with the Bebenek family, when Meagan, age 4, was diagnosed with an inoperable and malignant brain tumour.

Throughout his career, Dr. Bouffet has advocated strongly for collaborative approaches in both research and patient care. This led to a dream realized with the establishment of Meagan’s HUG Neuro-oncology Fellowship. This Fellowship receives multiple applications each year, and is fully funded by Meagan’s HUG. The first Fellow, Dr. Alvaro Lassaletta, from Madrid, Spain, was welcomed in 2014. The ninth Meagan’s HUG neuro-oncology Fellow from Sweden, Dr. Mari Wilhelmsson, will start work here in Canada inJuly.

This collaborative approach also includes international consultations with patients their families, and their physicians, offering no cost international neuro-oncology teaching sessions to haematologists and oncologists; as well as a monthly international twinning program, conferences and rounds with national centres in Pakistan, Jordan, Ukraine,China and Malaysia-Singapore.

Dr. Bouffet is known internationally for his innovative work with clinical trials, and with new drugs. He has a keen interest in brain repair and rehabilitation, and with his colleagues has careful regard for the quality of life of his young patients. The list of Dr. Bouffet’s professional affiliations is lengthy, so too the list of numerous awards, some for his humanitarian work.

His engagement with Meagan’s HUG began in 2001, and over the years he has been featured as a keynote speaker, at various Meagan’s HUG events, including the Mother’s Day Weekend signatureHUG event, and The Crane Ceremony. He is an avid supporter of Meagan’s HUG, follows the progression of this organization closely and engages in many aspects of its development.

Hallmarks of Dr. Bouffet’s medical practice are kindness and empathetic care. At Meagan’s HUG events he is quickly surrounded by his young patients and their families; he appreciates the opportunity to walk in solidarity with others and is loved for his respectful and compassionate presence.

What does Dr. Bouffet’s plan for the future hold? At first, Dr. Bouffet would like to spend more time with his family. And his professional interests will see him continuing to work in low and middle income countries, particularly in Africa. He also is maintaining a research appointment at SickKids and a keen interest in research activities. With some careful planning and a cooperative schedule, he hopes to continue to be part of Meagan’s HUG events.

So not a retirement plan, rather a new direction and opportunity; and not “adieu”, but “À bientôt”!

Meagan’s HUG applauds Dr. Bouffet for his contributions to the health and well-being of children everywhere, and thanks him for his support of this organization. We look forward to his return visits, early and often!

Save the Date - First Annual School HUG Day

Meagan’s HUG engages thousands of students in its “KidsHelping Kids” school program, which encourages compassion and kindness in students of all ages, while fostering leadership skills and opportunities.

This year Wednesday, June 1st is the day when Meagan’sHUG celebrates its message of hope with its first annualSchool HUG Day.

All schools are encouraged to host their own school hug event, which welcomes everyone in each school community to be part of the “circle of hope”. Circle the date on the school calendar, initiate a fundraising drive, plan the countdown, and plan to hug around the school, in the playground, or in the gym! Wherever works best for your school, get involved!

Cranes of Hope

Please join us at the annual Meagan’s HUG Crane Ceremony on Friday, April 29th, 2022.

When Meagan was diagnosed with a brain tumour, she was 4 years old and a junior kindergarten student. Her school community was dedicated to supporting Meagan and her family in whatever way they could.

In the spring of 2001, the entire school community- teachers, administration, students of all ages, support staff- was busy folding origami cranes. Origami is the art of paper folding, and in Japanese tradition, folding 1,000 paper cranes gives a person a chance to make one wish come true.

In early May, a few thousand of these colourful cranes, many inscribed with messages of hope and affection, were presented to Meagan at a special ceremony in the school yard.

Each year, thousands of cranes made by students from across the GTA are presented to Meagan’s HUG Heroes and their families. You are welcome to be part of this event, as we wish the Heroes well, and send them our messages of support and hope.

Known for fresh high-quality pasta products,Queen’s Pasta supports Meagan’s HUG through sales of specially marked packages of the Queen’s Pasta Star Ravioli product. Foreach package sold, a portion of sales will be directed to Meagan’s HUG. Please stop by their retail location – you are in for a treat!

Since 1983, Queen’s Pasta has been known

for providing their customers with innovative products, fine food and stellar, friendly service.

Thank you for your generous support!

HOPE FOR UKRAINE

In early March, Meagan’s HUG was asked to prepare for the possibility that families from Ukraine could be arriving in Toronto. These families would include children deprived of their cancer treatments in Ukraine who would need support. A quick response was needed to address pleas for help.

Meagan’s HUG secured support quickly from the UkrainianCanadian Congress (UCC). This includes Ukrainian-speaking volunteers to bridge the language barrier while providing support.

The next several days focused on bringing business leaders from across the city to support these families. The corporate and community response was amazing, with several organizations offering support. CanadianApartment Property Real Estate Investment Trust (CAREIT)was the first to answer the call, generously providing rent-free accommodations for the first six months.

Thus far, 6 families have arrived, and now have their children in the care of SickKids. With the assistance of the UCC, each visiting family has also been paired with a local “host” family to assist them as they become acclimatized to their new city.

In response to this humanitarian crisis, Meagan’s HUG has established a separate fund to support the needs of these Ukrainian families during their stay in Canada. If you would like to donate to this campaign, any and all financial support is most welcome. (live link to Hope for Ukraine donation button) Donations of $20 and more can receive a tax receipt for a charitable donation.

THANK YOU TO OUR COMMUNITY PARTNERS

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

Learn about the other members of the Top 25 Women of Influence

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter February 2022

Fri, 11 Feb 2022 01:19:58 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER FEBRUARY 2022

We’re Back! and Better!

After a long 2 years away, Meagan’s HUG is excited to announce the 21st Annual HUG event, scheduled for Saturday, May 7th, 2022 . Participating in Meagan’s HUG is a wonderful way to honour the spirit of Mother’s Day.

Getting all of us, the Meagan’s HUG community, together again to celebrate has been a dream since May 2020. There is a lot to celebrate! We have some exciting announcements planned.

This year’s goal is to raise $350,000 . All in support of paediatric brain tumour research at SickKids. Together we can get there. We have heard from teams and supporters across the country. Everyone is excited to get back to the HUG. Create your fundraising page, and let’s make some noise! Let's make this year the best one yet!

New this year: there are 2 ways to participate. Join us in person for the walk from Fort York to SickKids. Or participate remotely by planning your own route and walking in your hometown. Either way you can help support children and families affected by paediatric brain tumours.

Attending in person? Register before February 21st to take advantage of Early Bird Admission prices including new family rates. Planning to register and participate in your own hometown? There are no fees to set up your fundraising page and get started working towards your goal.

You don’t have to decide now. Set up your fundraising page and get a head start on achieving your goal. You can add your in-person admission tickets to your order at anytime.

In efforts to direct fundraising dollars to research, admission fees are used to offset the cost of the event. Costs, such as, venue rentals, permits, audio visual services, security, portable washrooms, tents, etc

Do you have an event registration credit from the 2020 HUG? Email us at info@meaganshug.com and we will

provide you with instructions on how to redeem your ticket for admission this year.

Follow us on social media @meaganshug to stay connected, learn some fundraising tips and how your support is making a difference today!

See you May 7th!

Tell Us Why You HUG

Be part of our commemorative digital HUG wall. Tell us why you HUG! Share your story and favourite pictures with us at fundraising@meaganshug.com and be a part of our community story.

Women of Influence - 2022

Denise's Story.

Meagan's HUG Founder Denise Bebenek has been recognized as one of the Top 25 Woman of Influence in 2022.

She has built a recognizable and respected brand and been the driving force behind a $6M fundraising effort. She has provided inspiration to thousands by sharing her story of hope, understanding, gratitude and support.

Congratulations Denise!

Send a Valentine's Day Card with Extra Meaning

Why not send love and a HUG this Valentine's Day with an e-card from Meagan's HUG?

Let the special people in your life know you are thinking about them while you help raise money to support families affected by paediatric brain tumours.

When you send a Meagan's HUG e-Card for $5, you share more than a thought. All contributions for e-cards go directly towards achieving the Meagan's HUG vision - A world where no children and their families suffer from a brain tumour.

Transactions over $20 are eligible for a tax receipt.

Happy Valentine's Day!

School HUG Day

Mark your calendars – June 1st will be our first annual school HUG day!

We are working with schools across the city to make this a special day. Our Kids Helping Kids school program teaches the lessons of hope, understanding, gratitude and support.

Nothing shows support like a HUG. Whether it’s a student on a cancer journey, or living with a mental illness, or someone who has lost a loved one, the HUG is for them.

Interested in bringing the HUG to your school? Send us a note and we can help – schools@meaganshug.com

Volunteer Opportunities Here We Grow Again

Volunteer Opportunities Here We Grow Again Do you want to be a part of our HUG movement in a new capacity? We are expanding our volunteer team and, with a number of roles available, there is something for everyone.

Learn more about the opportunities available by visiting our website.

Come join our enthusiastic team. Share your skills and talents to give back to your community, and support children and families affected by paediatric brain tumours

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter December 2021

Mon, 20 Dec 2021 18:28:00 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER DECEMBER 2021

Honks for Hope:

Drive-In HUG

On September 12th, following 17 months of solely virtual activity, we reunited as a Meagan’s HUG community at Honks for Hope – Drive-in HUG. There was no way we were going to let COVID-19 stop us from celebrating our 20th anniversary

year!

Honks for Hope began at Yorkdale Shopping Centre where teams assembled, embraced, and decorated their vehicles. Team Bike for Kids cycled out, first in the line, leading the four - wheeled teams to their destination. Thanks to the Toronto Police Service, the car parade had a full police escort as they made their way to Downsview Park, where we welcomed families and supporters.

The energy in the air was electric. Being together again, albeit in a safe, socially distanced format, was comparable to the energy we feel in May at our signature HUG event. The outdoor concert headlined by Jim Cuddy and his sons, Devin Cuddy and Sam Polley, had everyone up singing and dancing beside their vehicles.

And thanks to Patrick McKenna and Deb McGrath for volunteering their time and talents as special guest hosts, and helping the show run so smoothly!

Thank you to all our sponsors, families, participants, entertainers, and volunteers for making the day such a memorable event.

A special thanks to IKEA Etobicoke for providing gift cards to the winners of the car decorating contest.

Mark Your Calendars and Save the Date – May 7, 2022

Registration is now open for our 21st Annual Meagan’s HUG in Toronto. Many members of the Meagan’s HUG community have been asking about our 2022 plans and we are excited to report that we are actively planning

for an in-person event.

With Fort York as our starting point, we will walk together as a community making noise on the streets of downtown Toronto to bring awareness to our cause. Together, we will wrap our arms around SickKids bringing a message of hope to patients, families, caregivers, doctors, nurses, and researchers inside, letting them know that they are not alone. Together we HUG!

This year there are 2 ways to participate:

1) In-person: We invite people of all ages and abilities to come walk us through the streets of Toronto and feel the power of the HUG in person.

2) Virtually: The positive aspect during COVID is that our HUG has expanded beyond Toronto, to villages, towns, cities across the country and around the world. We want to keep that momentum going!

Registration is required for those planning to attend Meagan’s HUG in person. Back by popular demand are the early bird admission fees. Complete your registration by February 21st to take advantage of the reduced prices.

New this year we have introduced family admission rates; and yes, these too have early bird discounts available.

In our efforts to always maximize the impact of fundraising dollars and direct them to research, admission fees are used to offset the event expenses, covering costs, such as, venue rentals, permits, audio visual, staging, policing, security, portable washrooms, tents

etc.

Once registered to attend in person, or if participating virtually, it’s time to set up your fundraising page. Whether you participate as an individual or as part of a team, setting a fundraising goal makes a difference. Working towards a goal helps your donors know what you are striving for. You can monitor your own progress against your goal, all the while knowing the impact you are making in the lives of children and families affected by paediatric brain tumours.

Why not kick start your fundraising by setting up your page ahead of the holidays? Many people give to charities over the holiday season, leading up to the December 31st tax deadline. Sharing your page with your families, friends, colleagues, and neighbours

who may be looking for a charity to donate to can help you towards your 2022 goals.

Volunteer Toronto - Legacy Awards

Earlier this month, we were excited to learn that our Founder, Denise Bebenek, was selected to receive a 2021 Legacy Award from Volunteer Toronto. Denise was presented with a Lifetime Achievement Award to recognize the impact she has made on countless individuals and the legacy that has been created with Meagan’s

HUG. As is her style, in her acceptance, she offered the recognition from the Legacy Award to the many volunteers who dedicate their time day after day in support of the Meagan’s HUG mission. It truly is a team effort, but only made possible by having such a strong leader!

Year End Giving - Looking Ahead

2 021 is coming to a close but there is still time to make an impact in 2021. All donations to Meagan’s HUG must be received by December 31st to be receipted in the 2021 year.

If you are gifting securities or mutual funds, please allow for processing time through the brokerage.

Many make New Year’s Resolutions. We resolve to change an undesired trait or behaviour, to accomplish a personal goal or otherwise improve our lives.

Why not consider including Meagan’s HUG in your new year’s resolution this year by joining our volunteer team or becoming a monthly donor (click for more info) ? Giving back to others in any capacity is most rewarding. You

may be surprised by the power it has to improve our own lives.

From Our Family to Yours

The holidays are a time for coming together with family, connecting with

friends and reflecting upon the year we have had, while setting goals for the

upcoming one.

As we reflect upon 2021, we are grateful to our Meagan’s HUG community for

their support and dedication over the last 20 years. $6M raised is no small feat and we celebrate this accomplishment together.

As we look forward to 2022, we are eager to return to in-person events and the expansion of the HUG. There are so many children and families across the country and around the world waiting for our HUG. It’s time to start planning and get ready to welcome another city to the HUG.

You can find more information about our 2021 accomplishments and 2022

plans in our Impact Report

Sending you best wishes for a safe and happy holiday season.

Looking forward to being together again in 2022.

Denise and the Meagan’s HUG Team

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter June 2021

Thu, 17 Jun 2021 23:25:37 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER JUNE 2021

For the first time since May 2019, the Meagan’s HUG community will gather to celebrate 20 years of HUGs, accomplishments, memories, and stories.

The event mirrors all that makes our signature event special, all done in a safe way. Honks for Hope will begin with a car parade from Yorkdale Shopping Centre to Downsview Park. In team spirit, tap into the creativity and artistry that normally goes into your team shirts and posters, and decorate your car for the parade.

At Downsview Park, there are exciting plans for a 90-minute live entertainment event. Tickets for this event will go on sale in mid to late July, with two different ticket packages available. General admission tickets will be available for $250 per car. The HUG Experience Package ($500) will include reserved parking, commemorative event t-shirts and more. These ticket prices are higher than our signature event fees, yet we are confident that our entertainment line-up will be well worth the price of admission!

Many individuals have been fundraising in support of the Meagan’s HUG 20th anniversary and we want to acknowledge these efforts by offsetting the cost of your

GET Ready for Sept 12th

Meagan’s HUG announces the

Honks for Hope Drive-In HUG

on September 12th, 2021.

Honks for Hope ticket. For every $500 raised, you’ll earn $25 off your ticket price. Raise $1,000 and earn $50 off, and so on. Raise $5,000 and we’ll cover the cost of your general admission ticket.

We will be extending our 20th anniversary campaign to provide more opportunities for everyone to earn credit towards their admission. If you plan to attend Honks for Hope and would like to take advantage of this program, please send an email to fundraising@meaganshug.com to let us know that you will be working towards a reduced ticket price. We will monitor your progress and provide you with instructions on how to apply your earned discounts prior to tickets going on sale.

To ensure we can gather safely, space will be limited at Downsview Park. This means that tickets will be limited so please stay connected with Meagan’s HUG on social media to learn more about Honks for Hope and ticket sales details.

There are still a few sponsorship opportunities available. To learn more please contact our Business Development

Team – Jenny@meaganshug.com .

Tal’s Story

Just days after coming home from hospital following five months of intensive treatment for a rare brain

tumour, 4-year-old Tal rode half a kilometre on her tricycle. She teased her twin brother Noam as he tried to catch up to her: "You can’t catch me, you can’t catch me!"

Tal’s sense of fun, determination, and resilient spirit were her hallmarks.

Tal (affectionately known as Tali) underwent a four-hour surgery at the Hospital for Sick Children in October 2006, five days after her tumour was identified. To her family’s amazement, Tali, who was 3 at the time, was singing her ABCs in the recovery room following the procedure. A biopsy would determine Tali had an atypical teratoid rhabdoid tumour (ATRT), which holds a significant chance of relapse within the first year of diagnosis.

It was the beginning of a long and challenging road for Tali and her family. That surgery would be the first of many needed to stabilize her condition to prepare her for six cycles of chemotherapy in two phases, as well as stem cell transplants. Tali spent much of that time in near isolation in hospital, seeing only her parents and hospital staff, but was able to communicate with Noam and her big brother Amir by webcam.

She quickly learned to adapt and overcome her fear of daily medical procedures. In fact, she began to take an active role, insisting on doing as much as she could on her own, such as taking her own temperature and blood pressure. As she conquered each procedure, she was rewarded with bravery beads, and she displayed her vast collection with pride.

Tali was well enough after some of the cycles that she was able to go home for brief visits. The stars aligned and she was with her family to celebrate Amir’s birthday, the birthdays of each of her parents, as well as Passover.

Throughout her five months in hospital, Tali found ways to make the best of her circumstances. One of her favourite activities was making gifts to send home with visitors. She would string beads into bracelets or

necklaces, or work at arts and crafts, many of which she would bestow upon lucky recipients, who would be seen leaving hospital clutching one of Tali's

masterpieces. Tali would bid them goodbye with a grin and a "See you later, Alligator", and wait for the correct response: "In a while, Crocodile".

Tali was discharged from hospital on March 30, 2007. She gained weight, her hair began to grow back, and she resumed a more normal life despite the continued medical procedures, which she took in stride. At the park, she would speed down the slide or swing high in the air, often laughing out loud. She rode her bike, went for walks around the neighbourhood, played soccer, blew bubbles, drew chalk pictures on the sidewalk and played hopscotch. She particularly loved to swim, and after her feeding tube and central line were removed at the end of June, she spent a lot of time in the pool or at the lake.

In early August 2007, Tali began to have stomach and neck pain. A CT scan and subsequent MRI confirmed that Tali had suffered a severe relapse: There were no

further treatment options available. Tali’s parents brought her home to be with the people who loved her most. Three weeks later she slipped away peacefully and quietly, with her heartbroken parents by her side.

Brain Tumour Awareness Month

May is a busy month for the Meagan’s HUG community. Several activities ran as part of our 20 for 20 Campaign . Thanks to our partners and participants. From the #HUGChallenge to Cranes of Hope and Show Us Your Hero , emerge stories that inspire our community. Thank you! Of special note, over $1300 was raised thanks to Courage Cookies campaign.

On Mother’s Day weekend, the Meagan’s HUG family celebrated our 20th anniversary. The anniversary was

marked with special moments.

A full-page advertisement in The Globe and Mail of May 8th, courtesy of Sick Kids Foundation, recognized the 20th year milestone of Meagan’s HUG. It celebrated the accomplishments achieved together, including raising almost $6 million for paediatric brain tumour research.

The CN Tower was illuminated in Meagan’s HUG colours, pink and purple, on the evening of May 8th in recognition of Meagan’s HUG and brain tumour awareness. The resulting significant boost in social traffic and media engagement with over 2.3M impressions, was due in part to interviews with Meagan’s HUG Founder, Denise Bebenek, broadcast on CP24, City TV and CTV. Meagan’s HUG also recorded a 200% increase in monthly website traffic, experienced in just 48 hours, 92% were first time visitors.

Our 20th anniversary fundraising campaign gained momentum in May, and with our 20 for 20 activities

factored in, we have achieved $81,000, which represents 29% of our annual fundraising target. Many charities have experienced a decline in donor contributions over the last 12 to 14 months. In the meantime, Meagan’s HUG maintains research funding

opportunities wherever possible. Thank you to all who have supported our efforts this year. Together we are stronger!

Current Campaigns

You do NOT want to miss this!

Thanks to our friends at Pizzaville , $2 from every bread knot purchased between June 15th and June 30th will be donated to Meagan’s HUG in support of paediatric brain tumour research.

Thank you Pizzaville for your support!

Still Need Something for Dad!

June brings the warmer weather, the official start of summer and a day to celebrate all of the fathers and father figures in our lives. Happy Father's Day!

Celebrate Dad with something special. Sending an ecard is a great way to let the father figures in your life know you are thinking about and appreciate

them. Sending an e-card that makes a difference in the lives of children around the world, is even better!

IKEA’s Cranes of Hope

Paper cranes are a symbol of hope and are a key component in the Meagan’s HUG school program, Kids Helping Kids. Meagan’s HUG is now offering limited edition Cranes of Hope-Circle of Hope framed art pieces sponsored by IKEA- Etobicoke.

Meagan’s HUG provides hope to children, families, and medical professionals around the world by funding seed research projects.

Seed project funding allows researchers to develop the data sets required to seek additional funding sources and advance the understanding and treatment of paediatric brain tumours. Researchers who are successful applicants for Meagan's HUG support typically are awarded $25,000 to fund their research work. Your support of the IKEA’s Cranes of Hope campaign will help fund another research project.

IKEA-Etobicoke has donated the frames for this campaign and will be matching the donations for the first 20 pieces. That's $5k to kick-start the research

project. Thank you, IKEA - Etobicoke for your generous support in funding research!

Get your Cranes of Hope art piece today, before they are gone.

Tax receip ts will be issued for your donations to this campaign.

Karma Class

Yoga can help manage anxiety, improve emotional regulation, boost self-esteem and increase body awareness and mindfulness.

The breathing exercises and relaxation techniques learned from practicing yoga can help with stress management. For children too, learning how to reduce stress in a healthy way is an important life skill that will help them while children and into adulthood.

Our friends at YogaLoft and many studios across the city will be participating in a virtual Karma Class

encouraging their members and yoga enthusiasts to make a donation to Meagan's HUG in lieu of a class/studio fee for the session.

The virtual session is good for beginners, children and experienced students alike.

Volunteers Needed

Volunteers have an opportunity to give back to the community. Join our enthusiastic team.

Meagan’s HUG is actively looking for volunteers to fill the following roles:

Social Media Specialist
SEO Specialist
Communications Specialist - Website Copy Writer
Communications Specialist – Writer
Newsletter Lead
Family Engagement Team Lead
Family Fundraising Coach(es)

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

https://www.surveygizmo.com/s3/5520368/Proton-Beam-Eng

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter February 2021

Fri, 12 Feb 2021 15:42:21 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER FEB 2021

Get ready to HUG!

You’re invited! Celebrate our 20thanniversary with us and be part of our HUG movement! A movement to spread Hope, Kindness and Love across our communities, country and around the world. A HUG can change things. It can heal, it can transform; it can show support and speak volumes when we often can’t find the right words.

That’s right! Rain or shine, we have walked and joined hands and created the “circle of hope”, and for 20 years have worked to change the world for children diagnosed with a brain tumour!

This year is special…a little different! With the pandemic restricting how we can gather, we are launching 20 Years of HUGs, a spirited all virtual fundraising campaign. Visit our event website for all the latest information and updates. Registration for this virtual campaign is free. You can join as an individual or with a team.

The 20 Years of HUGS campaign runs until June 2021.

Why do we HUG?

to share a message of hope and to encourage each other
to draw attention to the challenges that come with brain tumours
to celebrate the world of scientific discovery and the breakthroughs in research that are helping children affected by brain tumours
to continue our tireless efforts to improve the care and outcomes for young brain tumour patients

20th Anniversary Activities

Get involved, make a difference, have fun along the way. Participate in our 20 activities for 20 years of Meagan’s HUG! To be eligible to participate in the contests, you’ll need to be a registered HUG campaign participant. There’s an activity calendar to help keep you involved and on track. Here are your first few activities.

Movement Goal (until June 30th)

Set a goal for how active you want to be throughout the campaign. It doesn’t matter if your plan is to walk, run, cycle or even swim. The important thing is that you are moving. Let’s call this your movement goal. Track your progress and we will check in with you during the campaign to see how you are doing.

Hug Cards (Until February 14)

Send love and HUGS this Valentine's Day with an e-card from Meagan's HUG! Let the special people in your life know you are thinking about them and help raise money to support paediatric brain tumour research.

Snow Day Fun (February 15th to February 28th)

Who doesn’t love getting out in the fresh air to play in the snow? As Canadians, building a snowman or snow fort is just part of our DNA. We’d love to see your creations. Share the pictures on social media and tag @meaganshug and @thelunchlady and you will be eligible to win a $50 gift certificate for a Family Style Meal from The Lunch Lady. Be sure to follow both Meagan's HUG and the Lunch Lady on social media to see who wins!

Watch the calendar for the next activities, and get ready to join in. You can also create your own plans to share the message, raise funds, be part of the action!

Jess’s Story

In 2013, ten-year-old Jess started experiencing nausea and headaches that were so agonizing they would rouse her from her sleep almost every night.

When Jess’s paediatrician discovered pressure building on her optic nerve, he told the family to go immediately to SickKids. There, a CT scan revealed a brain stem astrocytoma.

“I didn’t really understand what a brain tumour meant,” recalls Jess. “But I quickly learned.”

Jess and her parents were told that the tumour was inoperable and the best treatment option was 70 rounds of chemotherapy.

After her ninth session, Jess suffered a stroke. While recovering in hospital, her doctors discovered that the chemotherapy hadn’t worked as they had hoped.

“We were horrified to learn that,” shares Jess. “Because we’d also been told that the tumour was inoperable.”

The tumour had in fact grown in such a way that her surgeons could remove it more easily. The procedure would be risky though—an operation Jess was told she might not survive. But ten hours later, she awoke smiling to the news that the majority of the mass was gone.

Today, what remains of the tumour is still considered inoperable, but Jess hasn’t needed further treatment. Several health challenges, including epilepsy and Postural Orthostatic Tachycardia Syndrome (POTS), are the enduring scars of her brave battle. But they haven’t stopped her from staying active. Jess enjoys long distance running, dance and playing with her beloved golden doodle, Bronson.

Jess admits that at times her journey with cancer felt isolating, but she found moments of joy and richness through Meagan’s HUG. It’s where she met her best friend and fellow Meagan’s HUG Hero Jadyn Schill.

Today, it’s her platform to advocate for paediatric brain tumour research.

“I feel certain that so many of the advances in treatment for paediatric brain tumours have come from funding from Meagan’s HUG,” smiles Jess.

Jess’s interest in research has become a career ambition. A focused student, she is applying to universities to study biochemistry and neuroscience and looks forward to a career of life-long discovery.

Submitted by Anna Muir

Fundraising Ideas

Raise funds virtually

Virtual Watch Party

Find a film or documentary and host a watch party to gather people together to watch virtually. Schedule a time and ask for donations.

Bad Hair Day

Everyone’s had one! Style your craziest hair ever, all for a good cause.

Ugly Sweater

A $10 entrance fee and give a prize for the ugliest sweater (as voted upon by participants).

Lucky Draw

Ask local businesses to donate gift cards and sell tickets.

Lucky Draw at Work

Ask your employer or boss to be part of a fun “lucky draw”. Sell tickets and have a chance to win. Ask your boss to donate a day off while your boss does your job for a day.

Craft Fair

Make some crafts and then sell the wares online.

Lego Competition

Show your creativity. Pick a theme and have participants create a lego sculplture in line with the theme.

Exercise Event

Host a zumba, yoga or pilates event.

Use your imagination and dream up another fun virtual fundraising idea. Some others include:

Jelly Bean Count
Pajama Day

Proton Therapy

Recently the Province of Ontario issued a draft recommendation and report on the status of public funding for Proton Therapy. A three week consultation period has now started.

Canada does not have a clinical proton facility which means families must travel to the United States for this type of treatment.

The COVID- 19 pandemic has made it even more challenging for patients seeking this treatment in the US, with border crossing restrictions being a concern added to a list which includes securing passports and visas, expenses incurred by staying away from home, disrupting the family and work schedules, and other travel stresses.

Click here for the full report about recommending public funding for proton therapy.

For patients and families interested in voicing concerns about the availability and public funding of proton therapy in Canada, you can submit your comments through this link:

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

CLICK to enjoy this virtual hug sent by

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter December 2020

Wed, 09 Dec 2020 01:18:49 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER DECEMBER 2020

MISSION

Harnessing the power of community to raise awareness and funds for paediatric brain tumour research to foster hope and improve outcomes for affected children and their families.

VISION

A world where no children and their families suffer from brain tumours.

MISSION

Harnessing the power of community to raise awareness and funds for paediatric brain tumour research to foster hope and improve outcomes for affected children and their families.

VISION

A world where no children and their families suffer from brain tumours.

A Message from our Founder

This holiday season is so different. Traditions and customary ways now meet with uncertainty. We no longer come and go as we please, do what we usually do. Not much is the same!

We all live different lives, have different experiences. We just cannot know what challenges will fall into our lives, or land on others. I learned that 20 years ago, as my family received the news of Meagan's illness, and our lives changed forever.

In the face of adversity, we can still make choices. Whether individually, or as a community, we can choose compassion, inclusivity, tenacity. And with Meagan’s HUG, this is what we do.

Being brave may not be a choice. The simple act of facing uncertainty, dark times can be an act of courage. It is our choice, to face uncertainty, to make way for hope and seek the light at the end of our journeys.

Together we are stronger. In troubling times, our choices to be caring and generous, can affect the lives of so many. Our choices can become the cornerstone that helps others to keep their footing during troubled and confusing times.

I wish all of you a peaceful holiday celebration. And thank you for your ongoing compassion and support. The children and their families whom we support, know they too can count on us during these challenging times.

Denise Bebenek

Founder, Meagan’s Walk

Another way to Give

Donating Securities

Did you know that you can donate securities to Meagan’s HUG?

Gifts of securities are a great way to help Meagan’s HUG reach its fundraising goals and make a lasting difference in the lives of children and their families who are affected by brain tumours. Your gifts are gifts of hope!

Donations of securities “in kind” also gives you a charitable tax receipt from

Meagan’s HUG for the value of the securities, and there is no capital gains tax for you to pay.

You can also plan ahead, and include a gift of securities to Meagan’s HUG in your estate and will planning.

Please contact Meagan’s HUG at info@meaganshug.com to find out more about how to donate.

Volunteer Profile - Samantha Martens-Friesen

Last summer, Samantha Martens-Friesen joined the Meagan’s HUG team of volunteers as Social Media Team Lead. Samantha may be new to the role, but Meagan’s HUG has had a place in her heart for years.

Samantha is aunt to Meagan’s HUG Hero Cienna. In August 2012, when she was six years old, Cienna was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), an aggressive and difficult to treat brain tumour. While living in Saskatchewan, Cienna and her family made several trips to SickKids thanks to generous support from their community. Caring and courageous Cienna never complained, even when she had to spend her seventh birthday undergoing radiation therapy.

During the summer of 2013, Cienna’s cancer continued to progress. She passed away peacefully on September 7, 2013.

That’s when Cienna’s mom Rochelle turned to Meagan’s HUG, moved to help create better outcomes for other children and their families. Samantha remained a pillar of support for Rochelle, her sister-in-law and best friend, advocating for Meagan’s HUG, sending donations and cheering on Cienna’s Rock’en Runners during the annual Meagan’s HUG five-kilometre walk.

Embracing the pandemic-caused shift to remote work, Samantha is thrilled to continue her contributions to Meagan’s HUG as a volunteer, leading social media management from her home in Creston, BC.

“I do it in honour of Cienna,” says Samantha. “In this way, I can support the bigger picture, getting to that point where children and families don’t have to deal with what my family has dealt with. It’s about finding future solutions, awareness and research.”

Samantha is a cherished member of the Meagan’s HUG family and we are awed by her incredible dedication to bringing us closer to a cure and a community of hope for children and their families.

Gifts of Hope

With the holidays approaching, now is a time to plan your year- end giving and to honour the spirit of the season by making gifts that count.

One thing that remains unchanged is your generosity in supporting Meagan’s HUG. Hope matters! And your commitment to changing lives of children who have been affected by a brain tumour diagnosis has given hope to countless families.

Would you make a special gift today to Meagan’s HUG? You can celebrate the season by making a donation in honour of a family member, friend, or colleague. Make this holiday memorable as a time of hope, a time to make a difference.

Get Ready to HUG!

Introducing the HUG CHALLENGE

We could all use a HUG

right now!

Hugs are simple yet powerful.

Hugs change things. Hugs heal and transform. A hug can say more than words ever could. Sometimes we all just need a hug and now feels like one of those times.

Hugs are what we are all about at Meagan’s HUG.

Now as Meagan’s HUG enters the 20th anniversary year, our goals remain the same: to increase public awareness of paediatric brain tumours; to raise funds to support research; and to share a message of hope with young patients and those who love them.

Our efforts support the “bench to bedside” philosophy that guides the remarkable work of the Brain Tumour Research Centre, where discoveries translate into tangible benefits for young brain tumour patients throughout the world.

The need for ground-breaking and life-changing brain tumour research is as important as ever.

Let’s get started!

Meagan’s HUG Ambassador, Greta Hodgkinson.

JOIN the HUG Challenge

Just like a hug, the idea is simple.

1. Record a quick video and let us know who you miss hugging and send them that hug virtually. Challenge at least one other person to do the same thing. Tag the people you are challenging and tag Meagan’s Hug too.

2. Post your video and challenge on social media using the hashtags #HUGchallenge #TogetherWeHug and help us send this hug across the country and around the world.

Don’t like videos? No problem. Snap a photo and include who you want to send it to and who you are challenging in the content of your social media post instead.

Not comfortable using social media but still want to help spread the word and share a hug? We’ve got you covered. Send your video/photo hugchallenge@meaganshug.com and we will post it for you.

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter November 2020

Wed, 11 Nov 2020 01:38:52 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER NOVEMBER 2020

MISSION

Harnessing the power of community to raise awareness and funds for paediatric brain tumour research to foster hope and improve outcomes for affected children and their families.

VISION

A world where no children and their families suffer from brain tumours.

MISSION

Harnessing the power of community to raise awareness and funds for paediatric brain tumour research to foster hope and improve outcomes for affected children and their families.

VISION

A world where no children and their families suffer from brain tumours.

A Message from our Founder

Dear Friends,

I could not have anticipated in March 2020 that this year would be a year like no other! Life does take unexpected turns, one of which gave rise to a vision of a “circle of hope”, Meagan’s HUG. At the approach of 2021, our 20th anniversary beckons to our community joined by hope.

No doubt, these are trying times. As I did 20 years ago, I reach out to my family, friends, community, so we can support and encourage each other, and, as we have done so well in the past, face challenges together.

I am told often that Meagan’s Hug’s contribution to changing the course of care, and outcomes for children affected by brain tumour diagnoses, is significant, life-altering. All these achievements and advances in research and improved care, we have accomplished together.

Despite the change in all our circumstances, Meagan’s HUG remains committed to its mission, and to harnessing our power as a community. We will move forward with our eyes firmly set on our goals, and continue to dream of a world where no child, no family will suffer with a brain tumour.

Be well!

Denise Bebenek

Founder, Meagan’s Walk

Year End Giving Gifts of Hope

This year is particularly trying for all of us, as we cope with the strain of the pandemic including the pressures it places on the day to day happenings in our lives. Seeing loved ones, families, friends, day to day routines- all is different. We miss the simple pleasures!

One thing that has remained unchanged is your generosity in supporting Meagan’s HUG and the ground-breaking research into paediatric brain tumours. With the holidays approaching, now is the time to plan your year-end giving, a way to get into the seasonal spirit is to plan.

Hope matters! Hope changes everything! And your commitment to changing the lives of children who have been affected by a brain tumour diagnosis has given hope to countless families.

Meet Nooah

In April 2018, nine-year-old Nooah and her mother Samima received the news that changed their lives forever—a 4.5 centimetre medulloblastoma had manifested itself in Nooah’s brain.

Nooah had been experiencing headaches and trouble with balance and movement, but to Samima, a brain tumour was a completely unthinkable diagnosis. Those words cast a shadow of grief and terror.

After Nooah’s operation to remove the tumour, the little girl began weekly chemo sessions. Devastated, Samima watched as her daughter lost her sight, speech and ability to walk. The strong drugs robbed Nooah of her beautiful dark hair.

Big-hearted Nooah had lost so much, but she continued to give. While grappling with the aggressive treatment, she insisted on donating the hair she’d lost to other SickKids patients.

The new year brought new hope for Nooah and her mother. At the beginning of 2020, Nooah’s voice came back, and with the help of her glasses, her vision improved. The sweet and resilient eleven-year old can move and walk on her own and will start Grade 7 in September.

“She’s my miracle,” says Samima.

The journey to recovery has at times felt isolating for mother and daughter. But in the open arms of the Meagan’s HUG family, they’ve found a sense of community and know they are never truly alone.

Submitted by Anna Muir

Research Story

Brain tumours cause the greatest number of cancer deaths and disability in children and young people. And this includes infant brain tumours as well.

Meagan's HUG recently provided funding for a research project into a rare tumour of the central nervous system. Dr. Annie Huang, clinician scientist, and her colleagues at the Brain Tumour Research Centre are researching how to develop new biology based treatments for a highly fatal infant brain tumour called embryonal tumours with multi-layered rosettes (ETMRs).

A molecular marker for ETMRs was first discovered by the Huang lab in 2009, which has made it easier to recognize this rapidly growing and aggressive brain tumour. ETMR is now thought to make up one of the largest categories of malignant brain tumour in infants and younger children under 4 years old.

As little is known about what drugs work in this disease and how best to treat children with ETMR, the Huang lab proposes to use advanced genetic technology to examine the effect of different drug classes on ETMRs. They will test a large library of 1400 drugs alone and in combination with the hope of identifying drugs and drug combinations that can be used in clinical trials.

Axis Gear

Don’t miss your chance to purchase some new Meagan’s HUG branded gear. You can order caps, t-shirts, bags, sweatshirts, all featuring the new look and logo for Meagan’s HUG!

Proceeds from the sale of gear will support the Meagan Bebenek Foundation, operating as Meagan’s HUG.

O rders can be placed until November 22. Delivery to your address will take place by mid December.

Thank You Pizzaville

SHARE A MEAL & A HUG

WITH OUR PIZZA & POPPERSPECIAL

In celebration of our first steps as an independent charity, Pizzaville launched a special campaign to raise awareness and funds for Meagan’s HUG. In September, every Pizzaville location donated $1 from the sale of every Pizza and Popper Special to Meagan’s HUG. The campaign ran from September 8th - 30th.

With your support, Pizzaville generously donated a total of $7600 to Meagan’s HUG.

Thank you to our friends at Pizzaville. Meagan’s HUG looks forward to collaborating with you again in the near future.

Swaddles + Hugs + Hope

A project based group, Xylem & Loom has joined forces with Meagan’s HUG and has an exclusive offer that promises hope for all!

Swaddles are now available for purchase – 100% organic cotton and bamboo, silky and soft, all natural and breathable swaddling blankets, safe for any sweet baby’s skin.

Proceeds from the sale of each swaddle are directed to Meagan’s HUG and its efforts in support of paediatric brain tumour research; and sharing a message of hope for all, including children and their families affected by a brain tumour diagnosis.

Order a swaddle online at xylemloom.com

Purchase a swaddle for someone you love. Or choose to donate a designated swaddle design to send to Mamas for Mamas, an inclusive community for mamas and caregivers, where no mama or child is left behind.

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US

info@meaganswalk.com

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada

Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

Newsletter September 2020

Tue, 01 Sep 2020 15:02:17 GMT

Meagan's Hug Newsletter

HUG NEWSLETTER SEPTEMBER 2020

MISSION

Harnessing the power of community to raise awareness and funds for paediatric brain tumour research to foster hope and improve outcomes for affected children and their families.

VISION

A world where no children and their families suffer from brain tumours.

MISSION

Harnessing the power of community to raise awareness and funds for paediatric brain tumour research to foster hope and improve outcomes for affected children and their families.

VISION

A world where no children and their families suffer from brain tumours.

A Message From Denise

Dear Friends,

As we anticipate our 20th anniversary year, I am delighted to share some important news with you.

On September 1st, 2020 we took our first steps as a newly independent registered charity, with a registered charitable number from the Canada Revenue Agency. I am confident this important change will open doors as we continue with our work and that great opportunities lie ahead.

As we mark this transition, please join me in celebrating our new name and image:

Meagan’s HUG: Creating a Circle of Hope.

Through the years, our friends and colleagues at SickKids Foundation have been a pillar of support and strength, helping every step of the way. Meagan’sWalk has been proud to support their vision of a healthy life for every child. And now, as Meagan’s HUG, we look forward to continuing and nurturing this mutually beneficial and respectful relationship, sharing our dreams, our goals.

We are going to continue doing the same sorts of things. All our fundraising endeavors, our “Kids Helping Kid” school program, our community partner efforts in support of Meagan’s HUG, will share the same vision, and continue, as they have in the past.

Our efforts together will continue to support the “bench to bedside” philosophy that guides the remarkable work of the Brain Tumour Research Centre. Research discoveries translate into tangible benefits for young brain tumour patients throughout the world.

I imagine a world full of possibilities and greater achievements, as researchers and clinicians around the globe work in collaboration to make their dreams reality.

Meagan’s HUG moves forward. With our steadfast and determined spirit, our vision remains strong.

Be well! Keep safe! And with abundant thanks,

Denise Bebenek

Founder, Meagan’s Walk

September is Childhood Cancer Awareness Month

Around the world there are countless organizations that make a special effort during September to heighten awareness about childhood cancer. When a child becomes seriously ill, life is turned upside down, and everything is out of order. No parent should have to worry about their child’s life being threatened and compromised by cancer.

So why should we raise awareness about childhood

cancers in particular?

Well, it’s because…

Childhood cancers are often different from the types of cancers found in adults. And the causes of childhood cancers are often unknown;
In kids, cancers appear in different parts of the body. And in a child’s growing body, a cancer may behave differently than in that of an adult, and treatments often need to be specific to a child’s needs and age to be effective and safe;
While cures for cancers sometimes seem far away, understanding cancer and how it works can help provide better care and healthier lives for our kids.

We can all help to make change happen!

Go Gold! Gold is the colour to wear during September, and wearing a gold lapel ribbon is an easy way to shine a light on childhood cancers, and can give you an opportunity to share what you know about children and childhood cancers.

Inform yourself! Do a little research and learn about childhood cancers.

Did you know that cancer is the most common cause of disease-related death in children? Some cancers, like leukemia, are more likely to develop in children than in adults.

In Canada, there are around 1700 new diagnoses of childhood cancers each year. Some types of cancer have effective treatment regimes, from which many children survive. However, long- term side effects are commonplace, and are varied.

Start talking and spread the word! Tell your contacts - friends, family, colleagues - about childhood cancer, and help them understand the seriousness of the illness and its impact on families.

Take steps …to raise funds for research! Get involved and invite your friends and neighbours to do the same.

Because, even in these physically distanced times, we can all take steps to make a difference for kids with

cancer.

Community Partners

As Meagan’s HUG takes its first steps as an independent charity, we are happy to announce a new partnership with Pizzaville. And in celebration, Pizzaville is launching a special campaign to raise awareness and funds for Meagan’s HUG.

From September 8 – 30, 2020 order Meagan’s HUG Pizza & Popper special from Pizzaville to help support

Meagan’s HUG. $1 from every special purchased will be donated to Meagan’s HUG. Order online at pizzaville.ca , on the Pizzaville APP, or by phone – dial #3636 from your cell phone to order for pick-up or delivery.

Pizzaville’s number one priority remains to provide their customers with the highest quality food and service, while ensuring food safety, customer protection and peace of mind. Pizzaville offers contactless delivery and pick-up! Read more about Pizzaville’s COVID-19 best practices online at www.pizzaville.ca/page/covid19

Fiercely Canadian, Authentically Italian, Pizzaville looks forward to serving you.

Thank you, Pizzaville, from your friends at Meagan’s

HUG!

The beauty queens at Pretty Little Secrets Lash and Brow Bar, Ontario’s best brow bar and Toronto’s #1 lash bar are looking forward to enhancing your lashes and brows!

This award winning beauty studio aims to enhance one’s natural beauty, and provides customized design and services, perfected through years of training and experience.

And the Pretty Little Secrets team is particularly proud of the care and help they give to clients who have experienced changes and hair loss due to serious health challenges and treatments.

Learn more at www.prettylittlesecrets.ca . Shop online

for all your lash and brow needs at www.prettylittlesecretsbeauty.ca

For the months of September and October, Pretty Little Secrets, through its sister company, Pretty Little Secrets Beauty, will donate a portion of sales from each “You Look Good Toronto” protective face mask to Meagan’s HUG.

To purchase your mask, you can email info@prettylittlesecrets.ca or call (416) 962-2313

Don’t forget to follow and like them on Instagram and Facebook! Links found on their website.

Thank you, Pretty Little Secrets for being such good friends and neighbours for Meagan’s HUG!

Hero Story

Meet Milo

“He’s the happiest kid,” says Alexandra of her seven-year old son, Milo, who loves swimming, biking and playing games with his friends. He’s growing stronger every day since enduring a brave medical battle in 2019.

It started with the words that caused Alexandra’s heart to stop. “Brain tumour,” the doctor had said, cautioning Alexandra about what she’d hoped to rule out after running a few tests on Milo, who’d been vomiting for 12 days straight.

But an MRI scan revealed a five-centimetre pilocytic astrocytoma that was causing Milo’s brain stem to haemorrhage into his spine and triggering hydrocephalus. The next day, Milo was taken for surgery. Nine hours later, the operation was complete and the tumour—completely gone. Fortunately, Milo hasn’t needed radiation.

For Milo, the tumour is something that came—was fought—and went, and through ongoing therapy, he’s regaining his energy and mobility. What won’t be gone any time soon are the friendships Milo has made through Meagan’s HUG and the special bond that forms while spending time with someone who’s been through the same experience.

“One of the reasons my son is doing so well is because of Meagan’s HUG,” shares Alexandra. “Receiving the best care in the world comes from the best research, and a lot of that is due to the fundraising done by Meagan’s HUG.”

GET LOUD!

Are you planning to GetLoud this September at SickKids annual event?

Did you know that for the first time this year you will be able to direct your fundraising efforts. To make sure that your fundraising dollars go to benefit

paediatric brain tumour research send us an email at info@meaganswalk.com with your team name and we will take care of all the details for you.

Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001

Canada Revenue Agency:

CONTACT US