Newsletter February 2021

MEAGAN'S HUG • February 12, 2021

HUG NEWSLETTER FEB 2021

HUG NEWSLETTER FEB 2021

Celebrating 20 Years

Get ready to HUG!


You’re invited! Celebrate our 20thanniversary with us and be part of our HUG movement! A movement to spread Hope, Kindness and Love across our communities, country and around the world. A HUG can change things. It can heal, it can transform; it can show support and speak volumes when we often can’t find the right words.


That’s right! Rain or shine, we have walked and joined hands and created the “circle of hope”, and for 20 years have worked to change the world for children diagnosed with a brain tumour!


This year is special…a little different! With the pandemic restricting how we can gather, we are launching 20 Years of HUGs, a spirited all virtual fundraising campaign. Visit our event website for all the latest information and updates. Registration for this virtual campaign is free. You can join as an individual or with a team.


The 20 Years of HUGS campaign runs until June 2021.


REGISTER NOW!

Why do we HUG?

  •  to share a message of hope and to encourage each other
  •  to draw attention to the challenges that come with brain tumours
  •  to celebrate the world of scientific discovery and the breakthroughs in research that are helping children affected by brain tumours
  •  to continue our tireless efforts to improve the care and outcomes for young brain tumour patients


20th Anniversary Activities

Get involved, make a difference, have fun along the way. Participate in our 20 activities for 20 years of Meagan’s HUG! To be eligible to participate in the contests, you’ll need to be a registered HUG campaign participant. There’s an activity calendar to help keep you involved and on track. Here are your first few activities.


Movement Goal (until June 30th)



Set a goal for how active you want to be throughout the campaign. It doesn’t matter if your plan is to walk, run, cycle or even swim. The important thing is that you are moving. Let’s call this your movement goal. Track your progress and we will check in with you during the campaign to see how you are doing.



Hug Cards (Until February 14)



Send love and HUGS this Valentine's Day with an e-card from Meagan's HUG! Let the special people in your life know you are thinking about them and help raise money to support paediatric brain tumour research.



Snow Day Fun (February 15th to February 28th)


Who doesn’t love getting out in the fresh air to play in the snow? As Canadians, building a snowman or snow fort is just part of our DNA. We’d love to see your creations. Share the pictures on social media and tag @meaganshug and @thelunchlady and you will be eligible to win a $50 gift certificate for a Family Style Meal from The Lunch Lady. Be sure to follow both Meagan's HUG and the Lunch Lady on social media to see who wins!


Watch the calendar for the next activities, and get ready to join in. You can also create your own plans to share the message, raise funds, be part of the action!


In 2013, ten-year-old Jess started experiencing nausea and headaches that were so agonizing they would rouse her from her sleep almost every night.


When Jess’s paediatrician discovered pressure building on her optic nerve, he told the family to go immediately to SickKids. There, a CT scan revealed a brain stem astrocytoma.


“I didn’t really understand what a brain tumour meant,” recalls Jess. “But I quickly learned.”


Jess and her parents were told that the tumour was inoperable and the best treatment option was 70 rounds of chemotherapy.


After her ninth session, Jess suffered a stroke. While recovering in hospital, her doctors discovered that the chemotherapy hadn’t worked as they had hoped.


“We were horrified to learn that,” shares Jess. “Because we’d also been told that the tumour was inoperable.”


The tumour had in fact grown in such a way that her surgeons could remove it more easily. The procedure would be risky though—an operation Jess was told she might not survive. But ten hours later, she awoke smiling to the news that the majority of the mass was gone.

Today, what remains of the tumour is still considered inoperable, but Jess hasn’t needed further treatment. Several health challenges, including epilepsy and Postural Orthostatic Tachycardia Syndrome (POTS), are the enduring scars of her brave battle. But they haven’t stopped her from staying active. Jess enjoys long distance running, dance and playing with her beloved golden doodle, Bronson.


Jess admits that at times her journey with cancer felt isolating, but she found moments of joy and richness through Meagan’s HUG. It’s where she met her best friend and fellow Meagan’s HUG Hero Jadyn Schill.

Today, it’s her platform to advocate for paediatric brain tumour research.


“I feel certain that so many of the advances in treatment for paediatric brain tumours have come from funding from Meagan’s HUG,” smiles Jess.


Jess’s interest in research has become a career ambition. A focused student, she is applying to universities to study biochemistry and neuroscience and looks forward to a career of life-long discovery.


Submitted by Anna Muir


Fundraising Ideas

Raise funds virtually

Virtual Watch Party

Find a film or documentary and host a watch party to gather people together to watch virtually. Schedule a time and ask for donations.


Bad Hair Day

Everyone’s had one! Style your craziest hair ever, all for a good cause.


Ugly Sweater

A $10 entrance fee and give a prize for the ugliest sweater (as voted upon by participants).


Lucky Draw

Ask local businesses to donate gift cards and sell tickets.


Lucky Draw at Work

Ask your employer or boss to be part of a fun “lucky draw”. Sell tickets and have a chance to win. Ask your boss to donate a day off while your boss does your job for a day.


Craft Fair

Make some crafts and then sell the wares online.


Lego Competition

Show your creativity. Pick a theme and have participants create a lego sculplture in line with the theme.


Exercise Event

Host a zumba, yoga or pilates event.


Use your imagination and dream up another fun virtual fundraising idea. Some others include:

  • Jelly Bean Count
  • Pajama Day

Proton Therapy

Recently the Province of Ontario issued a draft recommendation and report on the status of public funding for Proton Therapy. A three week consultation period has now started.


Canada does not have a clinical proton facility which means families must travel to the United States for this type of treatment.


The COVID- 19 pandemic has made it even more challenging for patients seeking this treatment in the US, with border crossing restrictions being a concern added to a list which includes securing passports and visas, expenses incurred by staying away from home, disrupting the family and work schedules, and other travel stresses.


Click here for the full report about recommending public funding for proton therapy.


For patients and families interested in voicing concerns about the availability and public funding of proton therapy in Canada, you can submit your comments through this link:


https://www.surveygizmo.com/s3/5520368/Proton-Beam-Eng


Meagan’s HUG Charitable Info

Registered Charitable Business Number

774077473 RR 0001


Canada Revenue Agency:

http://www.canada.ca/charities-giving

CONTACT US

416-239-7843


info@meaganshug.com

3273 Bloor St W, Etobicoke, ON M8X 1E2, Canada


Thank you to Meagan’s HUG newsletter volunteers,

Debbie Tong, Anna Muir, Blair Day

 

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